Researching for LGBTQ Health

Creating Our Families: A pilot study of the experiences of lesbian, gay, bisexual and trans people accessing assisted human reproduction services in Ontario

The Creating Our Families Research Project

Many LGBTQ people choose to parent. However, many LGBTQ people must rely on outside assistance to create their families, including use of assisted human reproduction (AHR) services (see Note 2, Note 3). As a result, LGBTQ people make up a significant proportion of AHR service users in some parts of Canada (i.e., up to 30%, as reported by one Toronto clinic). Despite this high rate of service utilization, much of existing academic literature about LGBTQ people and AHR services is comprised of papers debating whether LGBTQ people should have access to AHR services. These debates stem from widespread societal misconceptions about the presumed inadequacy of LGBTQ people as parents. In contrast, the impact of these societal misconceptions on provision of AHR services to LGBT people has not been well studied. This is particularly important in light of recent policy developments: in 2008 an expert panel convened by the Ontario Ministry of Children and Youth Services examined the barriers to accessing fertility services in Ontario and specifically recommended the removal of social barriers to AHR for LGBTQ people. Further, the Assisted Human Reproduction Act (AHRA) includes a non-discrimination clause barring discrimination based on sexual orientation or marital status. In this context, it is critical to determine to what extent AHR services are meeting the family creation needs of Canadian LGBTQ people.

In the summer of 2010, we began recruiting LGBTQ people from all across Ontario in order to learn about their experiences with AHR services. Over 110 LGBTQ people responded to our call for participants. For a number of reasons, including the aim for our study to reflect the diversity of the LGBTQ population - in terms of sexual orientation, gender identity, geographical location, and race, to name a few of the many social determinants of health, as well as AHR service experience - we ended up doing a total of 40 interviews with 66 LGBTQ individuals (including couples, co-parents and donors) who have used AHR services since 2007, are in the process of using AHR services or who avoided using AHR services for a number of reasons (i.e., discriminatory AHR service providers, cost of AHR services, rural location, etc.).

From the AHR service experiences that LGBTQ people shared with us, we aimed to: a) Describe the experiences of LGBTQ people with AHR services in Ontario; b) Identify perceived barriers and supports to AHR service access for LGBTQ people; c) Determine similarities and differences in the experiences of lesbian, gay, bisexual and trans people with AHR services; and 4) Use the knowledge gained to inform AHR service delivery in Ontario, and develop future Canada-wide research on this topic. Particularly, we aim to provide recommendations to AHR service providers to better meet the needs of LGBTQ people.

Like all of our other studies, the Creating Our Families project is a community-based research project that includes an advisory committee of relevant stakeholders, including LGBTQ parenting experts and AHR service providers.

Team:

  • Principal Investigators: Dr. Lori Ross and Dr. Leah Steele
  • Co-Investigator: Rachel Epstein
  • Co-Investigator/Interviewer: Stu Marvel
  • Interviewer: datejie green
  • Recruitment and screening coordinator: Lesley Tarasoff
  • Additional staff: Scott Anderson, Nael Bhanji, Mika Atherton, Andrew Ross, Emily Chen, and a host of other students and volunteers who helped recruit and screen participants and transcribe interviews

Funding:

Canadian Institutes of Health Research

Funded by the Canadian Institutes of Health Research Catalyst Grant: Psychosocial Issues Associated with Assisted Human Reproduction

Project Outcomes:


Notes:

2. Assisted human reproduction (AHR) is also known as assisted reproductive technology (ART). AHR services or ARTs include intra-uterine insemination (IUI), in vitro fertilization (IVF), and surrogacy, to name a few.
See a glossary of ART terminology.

3. For more information about LGBTQ people’s experiences with AHR services, see:

Ross, L.E., Steele, L.S., & Epstein, R. (2006a). Service use and gaps in services for lesbian and bisexual women during donor insemination, pregnancy, and the postpartum period. Journal of Obstetrics & Gynaecology Canada, 505-511.
Permission to post this article on this website has been provided courtesy of the Society of Obstetricians and Gynaecologists of Canada

Ross, L.E., Steele, L.S., & Epstein, R. (2006b). Lesbian and bisexual women’s recommendations for improving the provision of assisted reproductive technology services. Fertility & Sterility, 86(3), 735-738.

Epstein, R. (2008). The Assisted Human Reproduction Act and LGBTQ Communities: A paper submitted by the AHRA / LGBTQ Working Group. Toronto: Sherbourne Health Centre.

Epstein, R. (2008). LGBTQ Communities and AHR Services: Beginning a conversation. Infertility Awareness Association of Canada.